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INTRODUCTION
Pain relief has become a central issue in quality care of the dying and in the debate
over assisted suicide. Among the chief reasons frequently noted for the inadequacy of the
treatment of pain is that the legal system actually penalizes effective interventions to
relieve pain while it leaves neglect of pain unthreatened. In response, several states
have acted to reduce the treat of disciplinary action against physicians who appropriately
treat pain. Similarly, professional and consumer organizations have all advocated more
emphasis on improved communication between the physician and patient.
Over the past ten years, legislators and policy makers have also have paid great
attention to the important issues surrounding assisted suicide and end of life care. In
1997, for example, the U.S. Supreme Court affirmed that state legislatures may decide
whether or not to legalize physician assisted suicide. While the decision struck down a
patients right to receive physician-assisted suicide, the Supreme Court arguments
generated substantial interest in the care and treatment of patients at the end of life.
In response, several state legislatures began to explore ways in which to improve the care
of the seriously ill and dying patients. By early 1998, at least 20 states had established
commissions or task forces to examine end of life care issues. Most of the task forces
have focused on the themes that are highlighted in this report, including addressing
barriers to improving end-of-life care services, discussing factors associated with
physician-assisted suicide or encouraging better pain management by physicians.
The purpose of this guidebook is to provide information about the medical, ethical and
legal issues at the end of life. Since the issues surrounding end of life care are
complex, however, this guidebook is intended to serve as an introduction to the topic.
Toward this goal, this report summarizes and analyzes legislation on intractable pain and
barriers to effective pain relief. It also highlights the major policy considerations that
must be addressed in order to reach consensus on future strategies. This report must be
read in context with broader state health care reform and assisted suicide legislation, as
well as important federal legislative and regulatory approaches that affect medical
practitioners and the prescription of controlled substances.
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